I joined Young Living Essential Oils and then I unjoined.
https://www.facebook.com/pages/Learning-Naturally/448437555265955
I do hate selling things but find I enjoy essential oils, young living is a questionable company in that when I did the research I found that they are overpriced and the others work just as well, if not better for much cheaper. I also found the owner listed under Quacks. You can find it on my page in Facebook.
Hemihypertrophy is a condition in which one side of the body or a part of one side is larger than the other. Children with hemihypertrophy have an increased risk of developing certain types of cancer, including Wilms tumor (a childhood kidney cancer) and liver cancer. Children with hemihypertrophy may also develop scoliosis, a curvature of the spine.
Sunday, November 10, 2013
Sunday, October 6, 2013
Screening
I took Nathan for his bloodwork and sonogram and the nurse practitioner said to call back in April for his next appointment wow they have it for in six months. And he'll see the leg doctor again in a year.
This is different from what I have heard for screening, I'll double check if this is correct on the support group in facebook and there is also a yahoo group.
This is different from what I have heard for screening, I'll double check if this is correct on the support group in facebook and there is also a yahoo group.
Preschool choices Made
Nathan went to preschool last year for a brief time. Long enough that I know for him it is where he should be for 1/2 a day. As a former Preschool teacher, all day is a tad too long for any child. Mom time is so important, but with this some what hyperactive, busy child, learning to sit and listen to someone else works for me. Maybe I am past the age of repeating twenty times the same Hickory Dickory Dock....with the same excitement I showed when I did teach school.
I was going.... never finished this post and found it in the drafts.
I was going.... never finished this post and found it in the drafts.
Dealing with Communication
I started this but didn't write anything. Conversation with Nathan is different from other kids, but at this point it's so much better than it was that I am happy.
Sonogram and Bloodwork
It's that time again, I think, yeesh, does anyone pay attention to when the last sonogram was. I have forgotten.
Another leg length doc visit, another blood test, another sonogram, and pediatrician
Melt my heart little boy, melt my heart. Our MCG journey started at 9:15....whew even after a smoothy you are one strong, grouchy, boy. You didn't want them touching your legs or looking at you run. A guy got your borrowed wagon (they have these wonderful wagons that you love at MCG....and you ran after him. The doctor said he'd see you in a year, and that you will probably end up with a 2 inch difference between the legs. Freeze the growth plate, no he said this would be permanent and that he was going to screw it most likely to the bone and then it could be reversed still, doing the most non-evasive procedure but that is years away.
Next it's time for a sonogram, yeesh and "Mom, I want my smoothie" so we went back to the van and got it, which you finished filling your bladder (which I now know is fine for the scan and the bloodwork) .....oh man you pitched a fit at the sonogram gel..... yikes, one strong kid.
After this I was exhausted but it was time for the bloodwork. UGH two nurses plus me, but you did great and we got it done on the first try (these nurses know how to do it.)
Another smoothie wanted so after all this I felt you deserved it. So we got a smoothie and "Mom, pretzel." I got you one but put it in the bag and to the car we went.
Now to melt my heart, "Mom, a pretzel this makes me happy. Mom, thank you for taking me to the city!!"
Lunch and a visit to the pediatrician. You did great here also. Then a moment of panic as the nurse calls but she just wanted to let me know your sonograms are good. A long day but in the end I know you are okay. With all your quirks and hey autism they say, but whatever it is, I call it NIMS Nathan Isaiah Mullens Syndrome (and no nurse, I don't feel the need to go back to the geneticist to have him draw more blood and try to figure out what specifically Nate has. I know he has hemihypertrophy and he'll be eight soon enough and ummm that is enough for now.
Melt my heart Nate, and yes, it's time for your bath.
Next it's time for a sonogram, yeesh and "Mom, I want my smoothie" so we went back to the van and got it, which you finished filling your bladder (which I now know is fine for the scan and the bloodwork) .....oh man you pitched a fit at the sonogram gel..... yikes, one strong kid.
After this I was exhausted but it was time for the bloodwork. UGH two nurses plus me, but you did great and we got it done on the first try (these nurses know how to do it.)
Another smoothie wanted so after all this I felt you deserved it. So we got a smoothie and "Mom, pretzel." I got you one but put it in the bag and to the car we went.
Now to melt my heart, "Mom, a pretzel this makes me happy. Mom, thank you for taking me to the city!!"
Lunch and a visit to the pediatrician. You did great here also. Then a moment of panic as the nurse calls but she just wanted to let me know your sonograms are good. A long day but in the end I know you are okay. With all your quirks and hey autism they say, but whatever it is, I call it NIMS Nathan Isaiah Mullens Syndrome (and no nurse, I don't feel the need to go back to the geneticist to have him draw more blood and try to figure out what specifically Nate has. I know he has hemihypertrophy and he'll be eight soon enough and ummm that is enough for now.
Melt my heart Nate, and yes, it's time for your bath.
Friday, September 20, 2013
The Frustration of being Mom to Hemihypertrophy
The fact is my son has hemihypertrophy and it is visible to my eye, so I know he needs special doctors to treat this, but the selfish side of not wanting to constantly monitor everything is there, I need to make these appointments more enjoyable for me. I am going to do this, yes I have to bring him but he and I are going to have a special day. We have to do this so what can I do to make it awesome. October 4th snuck up on me and I didn't have his yearly appointment on the calendar but it's time to focus on the leg and when it needs to be lengthened he's almost 5 years old and I know he could shoot up 4 inches a year, I did. I was one of those tiny kids for a long time, I remember when I finally got to 55 pounds in 5th grade but then I shot up in one year 4 inches. I don't know how fast or quickly Nate will grow but I know his one leg needs to be lengthened and no homeopathic doctor is going to be able to do this....then again one never knows if one doesn't know about something, what is going on. Sigh. Chemically be able to do this is what the guy from Emory said. For now I am trying to have everything taken care of at MCG.
Now to call his pediatrician.
Now to call his pediatrician.
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