What does one do when life changes so crazily. Where are my rights as your parent? I'm looking at what the UN treaty is saying and saying NO!!
Your not in the "norm". What do I do? It isn't like he has a known syndrome. He is the unknown on so many levels. I just say it is NIMS the doctors haven't figured out what is wrong with this child, except he does have hemihypertrophy. From there they haven't called me with the results of his second cancer/tumor screening. What am I paying for? Seems like a lot of work I have to do on my own for his medical needs.
Speech, they are calling me again. Why? I am done with them if they can't figure out how to get the money, it's not my job either. I have a degree in early childhood and know far more about how to get him to talk. He also can talk, he just refuses to speak.
