I didn't know I was capable of so many emotions and frustrations until I was at Dick's sporting goods and got a phone call from the hospital in Atlanta. It really doesn't matter anymore, it all worked out for better than what I expected. It just was exhausting and emotional as once again the woman was informing me that my son would go under anestesia, yes I knew this and perhaps I've written about it, I was so happy thinking this time Nate would be gassed and then get his MRI. UMMM NO, they didn't do the gas...UGH WHAT?!! I KNOW I DOUBLE, TRIPLE CHECKED WITH THE DOCTOR...ugh. Needless to say, I was ticked but I cancelled the MRI.
An act of God that pushed me in a new direction, or an old one. Back to the doctor I had heard about in Augusta many times while I lived there, not sure why he wasn't my kids pediatrician except he must of left after Dr. Freeman did or before...anyway I found his name and found he had opened a new practice and (I am getting ahead of myself.)
First I called MCG and asked to speak to someone in the MRI department...took a while but I spoke directly to the person who monitors the kiddos while they are getting the MRI...and so it went. Yes, we do the gas on Monday and Thursday. I asked about Dr. Gett's ability to use the facilities, yes, he was there the other day or a patient of his was...okey dokey we are good to go.
Called the doctors office and spoke to them for a while and they could see me at 1:30 so I hopped in the car with all three boys, dropped my husband's car off at Groome and headed to drop the girls off at church and whew this is TMI and I am tired and rambling... Drove 3 hours to Augusta and me Dr. David Fisher, who spoke with me for well over an hour. Took Nathan's stack of paperwork and photocopied it....and said he's see him again on the 13th and blocked out an hour at least for his second visit.
Turns out Augusta has every doctor Nathan needs plus some others I hadn't heard about....okay health care that I already pay for here goes one expensive kid. We'll see if he ever speaks, reads, writes, life is interesting that is for sure.
Saturday, June 30, 2012
Thursday, June 28, 2012
YOU ARE SO WORTH IT NATE
Afraid to love, something that could break,
Could I move on, if you were torn away?
I'm so close to what I can't control
I can't give you half my heart, and pray it makes you whole
You're gunna have all of me, you're gunna have all of me,
Cuz you're worth every fallen tear, you're worth facing every fear
You're gunna know all my love, even if it's not enough
Enough to mend our broken hearts, giving you all of me is where I'll start.
I won't let sadness steal you from my arms
I won't let pain keep you from my heart
Trade the fear of all that I could lose, for every moment I share with you
[ Lyrics from: http://www.lyricsmode.com/lyrics/m/matthew_hammitt/all_of_me.html ]
You're gunna have all of me, you're gunna have all of me,
Cuz you're worth every fallen tear, you're worth facing any fear
You're gunna know all my love, even if it's not enough
Enough to mend our broken hearts, giving you all of me is where I'll start.
Heaven broke into this moment, it's too wonderful to speak
You're worth all of me, you're worth all of me
So let me recklessly love you, even if I bleed
You're worth all of me, you're worth all of me
You're gunna have all of me, you're gunna have all of me,
Cuz you're worth every fallen tear, you're worth facing any fear
You're gunna know all my love, even if it's not enough
Enough to mend our broken hearts, giving you all of me is where I'll start
You're gunna have all of me,
Cuz you're worth every fallen tear, you're worth facing any fear
You're gunna know all my love, even if it's not enough
Enough to mend our broken hearts, giving you all of me is where I'll start
It's where I'll start
More lyrics: http://www.lyricsmode.com/lyrics/m/matthew_hammitt/#share
Could I move on, if you were torn away?
I'm so close to what I can't control
I can't give you half my heart, and pray it makes you whole
You're gunna have all of me, you're gunna have all of me,
Cuz you're worth every fallen tear, you're worth facing every fear
You're gunna know all my love, even if it's not enough
Enough to mend our broken hearts, giving you all of me is where I'll start.
I won't let sadness steal you from my arms
I won't let pain keep you from my heart
Trade the fear of all that I could lose, for every moment I share with you
[ Lyrics from: http://www.lyricsmode.com/lyrics/m/matthew_hammitt/all_of_me.html ]
You're gunna have all of me, you're gunna have all of me,
Cuz you're worth every fallen tear, you're worth facing any fear
You're gunna know all my love, even if it's not enough
Enough to mend our broken hearts, giving you all of me is where I'll start.
Heaven broke into this moment, it's too wonderful to speak
You're worth all of me, you're worth all of me
So let me recklessly love you, even if I bleed
You're worth all of me, you're worth all of me
You're gunna have all of me, you're gunna have all of me,
Cuz you're worth every fallen tear, you're worth facing any fear
You're gunna know all my love, even if it's not enough
Enough to mend our broken hearts, giving you all of me is where I'll start
You're gunna have all of me,
Cuz you're worth every fallen tear, you're worth facing any fear
You're gunna know all my love, even if it's not enough
Enough to mend our broken hearts, giving you all of me is where I'll start
It's where I'll start
More lyrics: http://www.lyricsmode.com/lyrics/m/matthew_hammitt/#share
UMMM YOU HAVE GOT TO BE KIDDING ME
AND SO IT HAPPENED AGAIN. ugh. There are days when I think, forget this, the doctors etc. The speech therapy, the prescription for his shoe lift, the sonogram on his belly, and the blood test to make sure he doesn't have cancer. Can I run away yet? NO, of course not, I have to stand and fight for what is best for my boy. All of me is the song that comes to mind. I found myself sobbing as I drove down I-75 and once again crying as I write this. I DON'T KNOW WHAT TO DO. Keep moving forward.
There isn't much else I can do. I am calling Medical College of Georgia again in the am. It was too late when I called tonight. I need to know if they have the ability to run an MRI with knocking the kid out with Gas and then putting the needle in their veins. I am too tired to write what all happened. Dumb Doctor, said they could but they couldn't so once again I am at the start over again with Nathan. No MRI on July 6th. One emotional day for me. Cox cable it was the wrong day to come home and find that you turned it off. So tired of running out of banwidth, before running out of month.
There isn't much else I can do. I am calling Medical College of Georgia again in the am. It was too late when I called tonight. I need to know if they have the ability to run an MRI with knocking the kid out with Gas and then putting the needle in their veins. I am too tired to write what all happened. Dumb Doctor, said they could but they couldn't so once again I am at the start over again with Nathan. No MRI on July 6th. One emotional day for me. Cox cable it was the wrong day to come home and find that you turned it off. So tired of running out of banwidth, before running out of month.
Monday, June 11, 2012
Why run an MRI?
On my forum for Hemihypertrophy the importance of running an MRI on the brain was talked about, seems some don't have this run. For my son, I was rather insisting on how this would be done, but it would be done. I just wanted him to have gas first and then his veins entered. Seems they just didn't understand how complicated this child is at the Macon Children Hospital. Frankly they seemed like a bunch of idiots guessing on how to knock him out or calm him enough to put a needle into his arm. Yes, gas has some risks, but so does the numbing cream that they put on his arms in huge amounts under a plastic coating. I know, I got some on my lips and tongue and had issues for a day.
The importance of having an MRI was pointed out by a grandmother of a child with Hemihypertrophy. Jane Cooper had this to say, "MRI's are very important, my Granddaughter Scarlett has left sided hemi and her brain is affected, one half of the brain is larger and it has affected her optic nerve and has consequently affected her sight in her left eye, also it has affected how the brain fluid drains, she'll have to have a shunt when she is older, without the MRI we wouldn't have known any of this so I urge you or anyone else to do this!"
Adele Cloete Had this to say about why an MRI should be run,"As organs can be affected and could cause problems. In Jessica's case, her kidneys were affected and caused some slight dietary changes when she was smaller. In left sided Hemi, the heart could be enlarged and would need to be monitored closely. As Hemi is still a very "unknown" condition, I would rather have these scans done and deal with any potential problems as early as possible."
The importance of having an MRI was pointed out by a grandmother of a child with Hemihypertrophy. Jane Cooper had this to say, "MRI's are very important, my Granddaughter Scarlett has left sided hemi and her brain is affected, one half of the brain is larger and it has affected her optic nerve and has consequently affected her sight in her left eye, also it has affected how the brain fluid drains, she'll have to have a shunt when she is older, without the MRI we wouldn't have known any of this so I urge you or anyone else to do this!"
Adele Cloete Had this to say about why an MRI should be run,"As organs can be affected and could cause problems. In Jessica's case, her kidneys were affected and caused some slight dietary changes when she was smaller. In left sided Hemi, the heart could be enlarged and would need to be monitored closely. As Hemi is still a very "unknown" condition, I would rather have these scans done and deal with any potential problems as early as possible."
Monday, June 4, 2012
Geneticist Report
Today I received Nathan's Geneticist Report from Emory University School of Medicine.
Basically they wrote down things we said and sent it to the doctors we asked them to, from here we go for the MRI, sonogram and blood work on July 6th, from there I guess they will give us the diagnosis of what our son has for sure, but it sure seems like we are correct with saying he has hemihypertrophy.
Basically they wrote down things we said and sent it to the doctors we asked them to, from here we go for the MRI, sonogram and blood work on July 6th, from there I guess they will give us the diagnosis of what our son has for sure, but it sure seems like we are correct with saying he has hemihypertrophy.
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