Routine for Nathan

I forgot to write about my sons most recent routine check-up. He's fine, he's well, he's healthy and he is 5 years old. I don't even remember it was sometime in April, Friday before Easter that we made the journey again to Medical College of Georgia.

All my concerns for this child and I do believe he is now a normal five year old child with no delays. Many thanks to the other children/adults on facebook who also have hemihypertrophy and reassured me that Nathan was developing normally for a child with hemi and they also did the things he did.

Nathan does not have autism, but his paperwork says he does. I wish they would look more at hemihypertrophy and the development of the children with this condition rather than diagnosing them with what is common.

Nathan has NIMS, and no more tests are needed it is a simple diagnosis made by me. Nathan Isaiah Mullens Syndrome. We all have this syndrome we just need to rename it our name. Unique and created by God. Nathan is pretty amazing, created in the image of God.

http://www.youtube.com/watch?v=B98ycm5kH0E

Happy 5th Birthday!!

Oh he walks, he talks, he is my five year old little boy. Three more years of scans, but I feel so much better than I did years ago when I first had him, and wondered...... so many questions and so many answers have been given.

I watched the debate of Ken Ham and Bill Nye.....and I could just think....oh who cares about scientist, live and discover who a kid is, and how ahem God made them.

http://www.youtube.com/watch?v=B98ycm5kH0E

Nate is almost 5 years old!!

A few more weeks until age 5!! I hate that I am thinking only 3 more years of sonograms and blood tests and then the risk for Wilm's tumor drops off and they treat him like a normal child at his check ups, except the minor leg length issues. And a few other issues.

Cell growth, sigh such an important thing we take for granted. As I look at cancer and what it does to lives, I am amazed at the things it also causes and I know it wasn't what God planned, but He is in the planning.

Way back when I was a teenager I remember a man who got cancer, he and I had a bond of a song called "Someday". He's long since passed away but I think about him when I think of this song.

I can't find the words to the song on the internet, strange. The song goes on about all the questions you'd ask God because you don't have the answers to them. Life is like this with Nate, I don't have the answers with Nate I am constantly searching but in the journey I find myself looking more to God, so he points me in the right direction. I don't have the answers for this kid, but I know God knows every hair on his head.