co-op...it's interesting. You are with 11 other kids. I forgot the break through I had with you sharing...I was so shocked. You had your cars/trucks lined up and pitched a fit....so I removed you from the room and we spent some time sitting in a corner. It took a while but you wanted to go back to the other room.
"here, you go." I was shocked, as you handed the toy to Abram and continued to play. The other teacher looked at me and said, it's like another child. I don't understand why or when, but there are days where you take a huge leap forward and this was a day you turned a corner.
Hemihypertrophy is a condition in which one side of the body or a part of one side is larger than the other. Children with hemihypertrophy have an increased risk of developing certain types of cancer, including Wilms tumor (a childhood kidney cancer) and liver cancer. Children with hemihypertrophy may also develop scoliosis, a curvature of the spine.
Thursday, February 28, 2013
Sunday, February 10, 2013
Going Out to Eat
I don't like taking you out to eat. Often you are very difficult but today you were better behaved. Maybe because it was a buffet. You sat and ate rice. You got out of your seat once and ran around the restaurant but for the most part it was a success. It's the little things that make my day.
Friday, February 8, 2013
And Now You Are Four
Graduating from the 3 year old group. Are you ready? In many ways yes, you are ready to be four years old. You know your colors, many shapes, many words, but I wonder how far you will go. Octagon, you are so very cute when you say this. And last night as we said prayers together I noticed you can now clearly say so many names, Grandpa is one you struggle with.
You have grown up so much. You are drawing more, wish you would stay off the walls, your Dad gets upset when you color there. I was going to get you this awesome magnetic board that you cold also write on but then lost the sale on the yardsale site.
Your siblings are teaching you so much. I love watching them with you. You make them smile, and bring so much joy, and yes at times you are so annoying and you make the house messy with tons of toys that you struggle to clean up and constantly need help with.
I wish I knew if you should have a lift or not, the doctor says no, but you stand with your leg to the side. I am so thankful for other Mom's that have children with hemihypertrophy, I may only meet them online but it is enough to know I am not alone. A different journey than I would of chosen, but one that I would chose to take.
You have grown up so much. You are drawing more, wish you would stay off the walls, your Dad gets upset when you color there. I was going to get you this awesome magnetic board that you cold also write on but then lost the sale on the yardsale site.
Your siblings are teaching you so much. I love watching them with you. You make them smile, and bring so much joy, and yes at times you are so annoying and you make the house messy with tons of toys that you struggle to clean up and constantly need help with.
I wish I knew if you should have a lift or not, the doctor says no, but you stand with your leg to the side. I am so thankful for other Mom's that have children with hemihypertrophy, I may only meet them online but it is enough to know I am not alone. A different journey than I would of chosen, but one that I would chose to take.
Tuesday, February 5, 2013
Wednesday, January 23, 2013
Speech Bill
Well, thank-you so much for that $300 bill for speech. Should of stopped going, insurance stopped paying and we got stuck with a bill.
Thursday, January 3, 2013
Dinner Time
I am learning to prep my 3 year old son for dinner time. Take away the ipad early, but there is a problem. He needs to take a nap, but I don't have time to make him take a nap, nor will he, so I let him stay up and then he crashed early 6:30.
He didn't eat much dinner, he wanted peanut butter on a spoon around 4pm, and that probably gave him enough calories. He ate very little at dinner. He cries, fussing from being tired around this time a day. Last I saw him he had stolen a lollipop from a siblings stash and was happily running away from them. Next thing I know he's asleep.
He didn't eat much dinner, he wanted peanut butter on a spoon around 4pm, and that probably gave him enough calories. He ate very little at dinner. He cries, fussing from being tired around this time a day. Last I saw him he had stolen a lollipop from a siblings stash and was happily running away from them. Next thing I know he's asleep.
Tuesday, December 11, 2012
Almost 4 years old
What does one do when life changes so crazily. Where are my rights as your parent? I'm looking at what the UN treaty is saying and saying NO!!
Your not in the "norm". What do I do? It isn't like he has a known syndrome. He is the unknown on so many levels. I just say it is NIMS the doctors haven't figured out what is wrong with this child, except he does have hemihypertrophy. From there they haven't called me with the results of his second cancer/tumor screening. What am I paying for? Seems like a lot of work I have to do on my own for his medical needs.
Speech, they are calling me again. Why? I am done with them if they can't figure out how to get the money, it's not my job either. I have a degree in early childhood and know far more about how to get him to talk. He also can talk, he just refuses to speak.
Your not in the "norm". What do I do? It isn't like he has a known syndrome. He is the unknown on so many levels. I just say it is NIMS the doctors haven't figured out what is wrong with this child, except he does have hemihypertrophy. From there they haven't called me with the results of his second cancer/tumor screening. What am I paying for? Seems like a lot of work I have to do on my own for his medical needs.
Speech, they are calling me again. Why? I am done with them if they can't figure out how to get the money, it's not my job either. I have a degree in early childhood and know far more about how to get him to talk. He also can talk, he just refuses to speak.
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