OOPS

So I am sitting down trying to figure out the pieces of this puzzle and why pieces aren't fitting. Nathan has not been diagnosed by a geneticist. He has seen an pediatric orthopedic who knew enough to say he has hemi a sementry GOOGLE FOUND THIS

Hemi-asymmetries discussed here include: 1) hemihyperplasia which may affect either one tissue such as bone with secondary regional consequences or multiple tissues on a primary basis such as "hemihypertrophy"; 2) hemihypoplasia which may also affect one tissue such as bone with secondary regional consequences or multiple tissues on a primary basis such as in hemifacial microsomia; 3) hemiatrophy, the quintessential craniofacial disorder being Romberg syndrome; and 4) miscellaneous conditions such as Bencze syndrome and hemimaxillofacial dysplasia.

TAKEN FROM http://www.ncbi.nlm.nih.gov/pubmed/7608576

AND SO THE WONDER OF WHAT DID THAT DOCTOR SAY?? My husband found hemihypertrophy. And so did I when I googled uneven limbs....and that is how we found the name for what we are waiting for our son to be diagnosed as.....UGH.

So we need to see a geneticist and when could we get the first appointment for that: MAY 24TH, 2012. How long that one has been on the books, since May 2011....I do believe. I am just so baffled as I am still comprehending all this stuff that is being done and NOT being done.

It seems as if the parents whose children are diagnosed at birth, have a certain grove they are in, while I am so far on the power curve because it wasn't noticed until Nate's second birthday by the pediatrician.