My little guy just doesn't enjoy these visits. Doesn't matter what you tell him, he cries when they weigh him and when they measure, when they go near him. This is the first time he's had photos taken at the doctors, she tried to get him to say cheese, he just freaked out a bit. What can I say, the kid sees these places and realizes this is not Disneyland, he remembers needles and annoying people bugging him, he does not cooperate for anyone but the Geneticist Councilor, he gave her hugs in the end.

Today we had our first meeting with the geneticist and she was there for a little while don't really have much to say about her but she knew more about Hemihypertophy than the other doctors. I really wouldn't know about the neurologist because it was just me and my son pitching a fit the entire time we were in his office, but well his access to hospitals was so limited he was of little use for getting test done. Although his geneticist is unable to get the test done in Augusta where I had hoped at least we are having the test run the way the other parents described in they yahoo group and facebook page. They'll gas the kid and then stick needles into him, run an MRI to look at his brain and then a sonogram, not sure what else.

Geneticist councilor, I think her name was Kelly Connell was awesome. She wasn't faxed all of our information so after a few questions my husband said, it was all on the form we faxed in....so thankfully we had copies of that and everything but the information from the neurologist. She photocopied everything we had from the FIND program and all the doctors.

From there we talked for an hour, she asked us more questions, and more questions and more questions, and they asked Nathan to count to 10 toward the end....ummm so not ever happened, and of course he didn't do it. A bit of spanish numbers, but count to 10, no. He blew the doctor a kiss on the way out and that was his extent of his interaction. She didn't say she saw anything on his ears (some other hemi condition, guess there is some blood test for another.) And so our journey continues with this kiddo and some unconfirmed hemi something or another.

Guess we will see my favorite doctor in June the orthopedic doctor, first we'll need to schedule that appointment.